Latest from Ginger.

Latest from Ginger. Please keep praying for Ian...
"Henry continues to do well. Joey and I were updated by the doctors today on Ian. There is still uncertainty about what caused this with Ian but HLH was the theory that was discussed. There are two types of HLH, and my understanding is that a virus can trigger an overly aggressive immunological response that would be very similar to the rapid deteriorati...on that we witnessed with Ian.
The problem that we are facing is that HLH doesn't have a test that there is a positive or negative result, it is more of meeting a certain number of criteria. Ian "technically" meets the minimum number of criteria, although the doctor here tells us that he has never seen a case of HLH without certain elevated antibodies, which Ian doesn't have.
I am feeling very concerned and extremely burdened because the doctors are not certain either way. The treatment for HLH is steroids and low dose chemotherapy. My understanding is that if he has HLH it would help him now and prevent further life threatening incidents like this, but in the absence of a definitive diagnosis, I feel sick about exposing Ian to those treatments. Please pray for wisdom and divine guidance for us and the doctors in this. Love to everyone."


on our knees

 Sweet Ian, all i can hope and pray for is that i will hold you in my arms again soon...!
that you and Henry will be free of this plaguing illness in your tiny bodies
that you will be strong and healthy
that i will see you walk
and thank Jesus for His gift to us of your precious life.

Ian and Henry are both suffering from pneumonia in Phoenix Children's Hospital.
Ian is still in a medically induced coma and on morphine and blood thinners, therefore causing a risk of bleeding in the brain. Ginger wrote this last night:

"Last night [the 27th] was a very hard night for us. Ian seemed to be doing better, and was even playing and laughing a little but then suddenly could not keep his oxygen levels up and they progressively got worse. After unsuccessful interventions, they bagged him and then intubated him but could not stabilize him. They decided to transfuse him with hemoglobin and platelets, which he had been dangerously getting lower on the last few days. It was also decided to put him on an ECMO, which is a type of life support that acts as an artificial lung. His blood is pumped through the machine to oxygenate it and then pumped back into his body. He has to be on heparin to keep the blood thin, but this runs the risk of developing a brain bleed. Please pray specifically that this will not happen, since the only remedy would be to take him off the ECMO, even if he was not ready.
Henry seems stable and oxygenates well, although he has low platelets. Please pray that he gets better and not worse.We praise God that Ian is alive and stable. We praise the Lord for Henry and ask that he gets better. We are so thankful to have wonderful support from our family, friends, and even those that don't know us".



i had a very sweet time with a new old friend. we ate chicken pie. i cut her hair. we scattered flower petals.
good night~~


thousands of words


Caid climbed on a wall...
There were two snuggly babies on my pillow...
Dad showed me how to smoke a grape vine twig... 
I hung out with Pip, (who is getting married on Saturday)...
and Caid amended his Christmas list.


Just doesn't look right.

For along time I've felt that the letter G should come before F in the alphabet. These are the kind of things I think about.


cam and wren

Cam: Hey Mom. Wanna know what i hate?  
Wren: Uh oh...I'm scared. 
Cam: (laughs) Why? 
Wren: (kind of laughs) I'm just scared! 
Cam: Don't worry, it's not you. 
Wren: Uh oh---what? 
Cam: It's not you. 
Wren: Still… 
Cam: You're like, third. 
Wren: Third?? 
Cam: Or, i dunno, fifth or something. 
Wren: Do i have to be anything??
(for the record, i asked cam and wren to pose really quick for a picture for me and, well, that's what they did)


you did, little girl puppet.

Something you hear on the TV if you live in a house with small children.

Girl Puppet: Hey Elmo!

Elmo: Helloooo!

GP: Did i just hear you say 'hooray for underpants'?"